This is probably by far one of the rarest forms of sleeping disorders around. This is an inherited disorder that has only been found in 28 families in the world that have the dominant gene for it. The offspring of a parent(s) of developing the disorder is about 50% and there is no cure for this. The age
of onset is around the ages between 30 and 60 and the disorder's time frame runs between 7 to 18 months.
This disease has 4 stages that it goes through and 1st stage of the disease starts off with the sufferer dealing with increased insomnia leading to severe panic attacks, and various kinds of phobias, this stage lasts about 4 months, 2nd stage sufferer deals with hallucinations and panic attacks become more obvious and lasts about 5 months, 3rd stage Complete and total inability to sleep. And follows with drastic weight loss and lasts about 3 months, 4th stage Dementia sets in and progressively becoming irresponsible and mute over a course of 6 months and this is the final progression of the disease.
This sounds a lot like Alzheimer's because if you notice the time frame it's a lot less shorter than the actual time span of someone who deals with Alzheimer's because the sufferer is dealing with it for several years instead of a year where the disease progressively degenerates the mental capacity to such a degree that the sufferer has a hard time with memory.
As far as treatment is concerned sleeping pills don't have any effect for people suffering from Fatal Familial Insomnia and not even non-medicinal therapy doesn't work either. Medical science has no idea why it's a fatal disease and how they can create effective treatment options to combat this problem. And more effective genetic testing for diseases that are inherited to find out what can be done medicinally and therapeutically to deal with this sleeping disorder. Medication For Insomnia With Snoring Remedies
It's a matter of how much attention the medical world takes note of this and pushes the funding to finding a cure and effective genetic testing of families and tracking diseases through the generations to be able to have some kind of record of the disease passing down through generations or skipping generations which is what some diseases have done in some families for those who have a disposition for certain things.
This doesn't get nearly as much attention as all the other sleeping disorders because of it being rare, and only turning up in so many people and births making it not rare enough for it to get the recognition as regular insomnia and to qualify for the treatments. That are currently out there to help those 60 million people who are dealing with some kind of sleeping disorder(s).
With the way medical science is going it will be a matter of time before medical science catches up and helps the many people who are looking for a cure of being deprived of a restful night's sleep. The moment a cure is found is one more person who will be helped to have a good night's rest.
There are many people that have an undiagnosed sleep disorder. They may feel very sleepy during the day. They may have trouble falling to sleep or staying asleep. Friends or relatives may tell them they look very tired. They may experience mood changes, irritability or become overly emotional. Often they have difficulty paying attention, concentrating, or remembering things that are important. These are all symptoms of sleep deprivation, and possibly of a sleep disorder.
A person that has an undiagnosed sleep disorder will usually answer the question, "What is the problem with your sleep," with one of five answers. Those answers will be; "I have trouble falling asleep," " I have trouble staying awake," "I can't get up in the morning," "I seem to do strange things in my sleep" or "I can't sleep because of my partner." The particular answer chosen helps to narrow down the possibility of a specific type of sleep disorder.
When someone says "I can't fall asleep" it can mean several things. There could be a problem when first going to bed, after waking up in the middle of the night, or in the early morning hours.
Many people have the problem of not being able to fall asleep when they go to bed. This is called sleep latency. Sleep latency can be a very serious symptom of certain sleep disorders, including sleep onset insomnia, delayed sleep phase disorder, shift work, restless leg syndrome or paradoxical insomnia.
Many times the problem is not being able to stay asleep, which is sleep fragmentation. Often a person with this complaint can fall to sleep easily when they go to bed, but wake up often throughout the night. Sleep disorders may include sleep maintenance insomnia, shift work. If a person wakes up very early in the morning and cannot get back to sleep, it could be a sign of advanced sleep phase disorder or sleep maintenance insomnia.
If the answer to the question is "I can't stay awake" and the person is falling asleep at inappropriate times there may be a sleep disorder such as narcolepsy , obstructive or central sleep apnea, periodic limb movement disorder, restless leg syndrome, shift work or advanced sleep phase disorder.
Those that say "I can't get up in the morning" and take an hour or more to fully wake from their sleep may suffer from excessive sleep inertia. They are having difficulty making the transition from sleep to being awake. Sleep disorders that could be responsible for excessive sleep inertia are sleep apnea and delayed sleep phase disorder.
A person that answers the question with "I do strange things in my sleep" may find that their sleep is full of surprises. Sleepwalking, Sleep terrors, confusional arousals, REM sleep behavior disorder, nightmares, sleep-related eating disorder and bruxism are all types of sleep disorders known as parasomnias.
If a person answers "I can't sleep because of my partner" snoring, sleep apnea, bruxism, restless leg syndrome, or periodic limb movement disorder may be the sleep disorder to blame.
How would you answer the question of "What is the problem with your sleep?"
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